On Thursday we went into Australian Hearing to have some follow up hearing tests since the grommet went in.
We recently changed Centres to one right near our house, the commute was becoming more difficult with 4 kids.
Her hearing tests didn't show much change, She did 5db better across the frequencies & was testing at a severe level not a severe/profound level. The audiologist also performed a bone conductor test as well.
We have had the bone conductor test before, but i really never knew much about it & whenever she was tested with it the audiologists never really gave us an explanation as to why they did.
Today we found out ALOT more about Savannah's hearing loss that i had ever thought. We have known for quite sometime that Savannah's hearing loss was caused by the Connexion 26 gene.
I figured it was pretty straight forward, after the last 6 mths of tests & then finally after 3 consecutive tests her hearing loss was changed to severe/profound. We knew this finally gave us the opportunity to get referred back to the implant clinic & have Savannah re-assessed for the implant on her profound ear. But before that was to happen they wanted to try the grommet, which of course we where happy to do.
Its now been 4 weeks since the grommet was put in & her tests are only showed a 5db change. At first i was pretty excited about that, because that finally meant we could hopefully get things moving in the right direction for once, as its been a tough 6 months with having to go back & forth. Sometimes staying positive can be quite a challenge.
So when the audiologist wanted to test Savannah with the bone conductor i didn't think much of it. After all the testing was done, the audiologist explained to me she thinks Savannah has a Mixed Loss ( Sensorineural & Conductive). At first i was a little confused as to why on earth she would have this when clearly her hearing loss is from a genetic flaw. For those of you that arnt too familiar with a Sensorineural hearing loss, it results from missing or damaged sensory cells
(hair cells) in the cochlea and is usually permanent. This is what we knew & thought had only effected Savannah. But the audiologist believes that from Savannah's hearing tests both from Air & Bone Conduction that she is suffering from a Mixed Loss. The conductive loss is a problem in the outer or middle ear that prevents sound from being
conducted properly is known as a conductive hearing loss. Conductive
hearing losses are usually mild or moderate in degree, ranging from 25
to 65 decibels.
In this case, Savannah's conductive loss is not associated with fluid. Now that the grommet has been fitted the tests from the Bone conduction are still showing a huge discrepancy with the test that where done from the Tube phones.
I apologise if i am confusing you or am not explaining this correctly, because i am only trying to get my head around it all too. And i am only learning from what i have read online.
In a Nutshell, a person with Mixed Hearing Loss does not benefit from the Cochlear Implant.
As you can see its alot to take in, especially seeing when i walked in the door that morning i was expecting to hear
"the grommet has worked, Savannah is testing back at a Mod/Sev Level" or
"The results are similar & we are referring Savannah on to the Implant Clinic."
So of course my heart sank once again. She explained that most likely the bone in the middle ear is chipped or broken. Although only an MRI can confirm this & even then it may not. They can only really continue to go off what her current & recent hearing tests showed and both had bone conduction test results as well. I did ask if a MRI was able to detect this, could she have surgery to repair it....no she cant, they dont do the surgery on small children.
So im not sure where that really leaves us? We have to head back in 6 weeks for another full set of hearing tests & then im not sure. Our bump in the road may be just a bit bigger this time, i may be full of tears just thinking about how uncertain things are right now, but Savannah continues to amaze me, that beautiful little girl has a smile that could change the world. And she is going to do great things we Just have to stay positive!
I have a buddy who's great at this and if U have facebook, check him out.
ReplyDeletehttps://www.facebook.com/DLS4U2?ref=ts
Do not despair. She will be GREAT with the hearing aids too. Honestly. Really.
ReplyDeleteWhere is her speech/language at?