Savannahs Journey: May 2012

Monday, May 28, 2012

Where we are at

Today we saw the ENT to find out where we are headed with Savannah.

The ENT has decided to go with a grommet on her left ear & then follow up a few weeks later with a hearing test. The paperwork went through today so hopefully we will have a date for her day surgery to get the grommet put in by this week.

This is where we are at & she did tell us that this may not work because Savannah has had fluid in her left ear since July last year so the drop in her hearing could be from damage that the fluid has caused. At least its a start & we are happy that they wanted to go ahead with this before we revisit the Implant clinic.

So now we just wait & see how things go! Stay tuned :)

Monday, May 21, 2012

May 21st 2010 & now.

On May 21st 2010, 2 years ago today, we where given Savannahs Diagnosis. We were devastated. I remember this day like it was yesterday. Not only because we where worried & uncertain about her future but because we didn't know back then that she would be able to learn to speak. Our life changed instantly. But we realized that things could be worse, we loved her no matter what.We knew the journey would be a long one & that every day would be challenging trying to teach our daughter to listen & speak. But we where told by the time she was ready for School she would be talking like her peers. The early days where hard, all the appointments, the speech therapy, and the constant thought "Am i doing all i can for her."

Then the words started coming & we couldn't have been happier. It felt amazing to hear simply little words like "mama" come from her.

But we knew time would only tell to what extent she was really hearing with her hearing aides. Savannah at the time was not eligible for a Cochlear Implant because she had too much residual hearing in her good ear (mod/sev).
Even though at times i wished she was implanted, she then would show me how well she was doing & then i would be glad she wasn't.

The last 2 years have been a rollercoaster of good & bad, i wouldn't have changed it, but today i still sit here writing with a heavy heart worrying about her near future. The biggest difference from 2 years ago to today is that she will speak just like everyone else, we just have to go through all of these hurdles first! And without the hurdles there really would be no journey.
Savannah has been doing amazing even though she is now hearing at a severe/profound, profound level.

Her expressive & receptive language is amazing & age equivilant but,

we wont know much more untill we see the ENT next week whether they will refer her to the CI clinic again or they will try grommets.There was some fluid present but a few weeks back the ENT was unsure if grommets where going to help.

We have another hurdle to overcome, but Savannah is still doing great & is a trooper and we will continue to do everything we can for her.

We are so lucky that she is an amazing little girl who smiles through it all.