Wednesday, March 30, 2011

Another Pass!

My middle son Blake had his hearing tests yesterday & thank the lord he passed & was in the normal range!!!
What a sigh of relief!
I feel very lucky & Blessed that the boys are both hearing especially seeing as we have the Connexin 26 gene in our family.
So 1 more ABR to go, this baby is due next week & will be here by next Friday as the booger is breech :(
So fingers crossed he is fine too!


Friday, March 18, 2011

HAPPY 1ST BIRTHDAY!!!!!!!

Yesterday (17th March) was Savannahs 1st Birthday! 1year ago my baby girl was born!
WOW time truly flies, but more so what a year it has been!
Whoever thought after such a blessing we would have gone through the biggest emotional roller coaster of a year! Of course i wouldn't change it for the world, it has made our family stronger & opened my eyes & changed me in a way i could never really explain. All for the better of course :)
Savannah still ceases to amaze me with how much she is learning with just her hearing aides & how well she is talking & starting to understand what we are saying.
Her hearing loss is quite severe so for her to be doing this well is always reassuring.

So far to date Savannah can say:
Mama
Dadda
Nana
Bubba
Up (which is her new word)
Ta (which we have only heard a few times as this is new too)
Brmmm (which is a VERY new word that she is recognising as the sound for Car)

I am happy at where is she, of course more words are great but we are working on them!

She has taken 2 steps & really wants to walk but isn't quite their yet which is ok, but with the new baby due in 3 weeks i would LOVE for her to be starting to walk to give poor mamas back a break..lol

She also has 4 teeth now, 2 top & 2 bottom & boy oh boy this baby girl does not like teething! :(
Nothing seems to work for her, so its basically in bed with us, or 2-3 bottles of milk a night! grr
We also have to use the cap when shes teething as she just refuses to keep the hearing aides in, not a biggie but i LOVED not having that on, but its not all the time so it isn't too bad!

We had a birthday party for Savannah a few weeks ago & she absolutely loved it. I did notice though she refused with every power to not have hearing aides in. I think with all the kids & adults there it was just overload for her & she really didn't like it. I also didn't want to put her cap on either so i let it go for the afternoon, but as soon as the guests left she was quite happy to have them back in.

We are appt free for a few months, only have our speech therapy & deaf school programs which is on Fridays, so when we revisit the implant clinic in May we will know more & most likely have a definite answer on whether or not Savannah will be implanted!
So ill keep updated when the time comes.

Here are some pictures of Savannahs bday Party & Her bday yesterday :)






Monday, March 7, 2011

Mixed Opinions

So if you read my last post, you would know where we currently stand on the Implant situation.
Well....today we had Savannahs 1yr appt with the ENT. She obviously receives all the reports & progression letters on Savannah to read up before our appts & so she can follow Savannahs progress along the way.
Well today she gave us yet another opinion on what we should do about the implant.
She recommends that we continue with the hearing aides & once necessary (if at all) then review the implant. She told me that she has seen many children with the similar loss as Savannah, some that have never needed the implant & have progressed wonderfully with normal speech & some not so well. But she did say that she believes that Savannah is getting enough from her hearing aides. From seeing her today & reading the reports she really does think the Left ear is working with the right ear (with whats left of the residual hearing) And carrying her along nicely.
OK...so where does this leave my scattered little brain?
I'm confused once again! The implant clinic recommend one, The Speech therapist thinks its a good idea to have 2 good ears, The ENT thinks we should not play with her residual hearing if its working for her...???
Me & Hubby had just decided that we where going to pursue the implant for her right ear in May when we go back for the review, but now i am not so sure again....
decisions decisions........
Tomorrow will give me a little bit more idea of what she is hearing as she has her 1yr hearing tests & hopefully is able to give us a better picture of whats she is hearing from the tests that they ran 4 mths ago.
Fingers crossed anyway.
But i know we are back to the drawing board to wait it out & see how she does..