Yesterday Savannah had her first appt with the Implant clinic & their team to discuss options for her. We meet with a lovely lady first & she was their to assess Savannah & see how she was progressing & to ask questions about how things have been going since she was diagnosed. Thankfully i had an extremely happy baby & all she wanted to do was show off, so she got to see the really vocal side of Savannah.
She was extremely impressed at how she was progressing & how she was vocalising.
Savannah at present is showing great signs of her hearing aides working for her. Their is still lots of work to do with her in regards to therapies, hearing tests etc... But so far she thinks Savannah is doing remarkably.
Of course i was quite chuffed at her comments as I have put alot of time & hard work into getting Savannah where she is today. We still have along way to go, but she is really starting to understand what I'm saying.
Basically the end result of the meeting with her was that Savannah be tested at the implant clinic to give them their own results for where her hearing is at with aides & without, then they want to do more assessments & spend some more time with her to discover more about her.
I was happy with what she had said so she sent us off to wait for our appt with our Implant Dr who was Dr. Markus Dahm.
The appt with the Dr was surprisingly short, I thought their would be more too it, but after he read the recommendation from the speech therapist we had seen earlier, he was adamant that Savannah was not a priority patient & that he wanted to assess her progress more over the next 4 mths. He also didn't want to order the MRI/CT scan yet as he feels at this point in time & with how well she is developing in all areas he doesn't feel or see the need to put her under general anesthetic to give her a brain scan.
I was a tad disappointed about that, as i would LOVE to know if her cochlears are fully formed or if she might have LVAS. But at the same time he explained that Savannah seemed to be doing wonderfully with her hearing aides & that he wasn't happy to proceed much further with investigating the Implant option just yet. Their is a check list of things they need to perform first anyway before they will go ahead & say she is ready for the implant.
On the 14th Dec she will have a full day of assessment back at the Implant clinic for Hearing Tests, Speech therapy & behavioural therapy.
All of this is information for them to make an informed decision.
After this appt they will See Savannah again late Jan 11 or Early Feb 11 To see where she is at & if they believe the MRI/CT is necessary they will go ahead & book that in.
So basically what we have come away with is that they are Happy with her current progress & feel she will come along way in the 4mths. They & ourselves(hubby & me) want to carry her as far as we can with the hearing aides & know if we do need to get the implant for her right ear, we are looking at after she is 12mths of age.
Her good ear is carrying her & looks to be carrying the right ear along with it.
I am thrilled that they have said this, i know their is plenty of more tests & decisions to be made in her future, but for now i am happy & content at where we are at.
I will Keep you all updated :)
BTW Savannah is going to be the princess of the family, we are having another Boy :)
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