Saturday, January 22, 2011

Good one Mama!

After months & months of guarding those tiny little hearing aides as best as i could, even though we have lost them, found them then lost them again, they have always made it back into our hands (THANKFULLY)
BUT yesterday the damn little things won & i took a defeat :(
Savannah was napping & i was scurrying around the house doing the cleaning & laundry so i could rest before she woke up. Well after the full cycle on the washing machine had finished i proceeded to take it out....only to notice that there where 2 shiny little pink hearing aides starring me in my face!
I don't even think i took a breathe at that stage i opened the washer up grabbed the hearing aides shook the residual water from them, changed the batteries in some hope they where still alive....After turning them on there was no sound...
I was shattered literally had tears streaming down my face.
I am usually so careful with them, but today was not to be my day.
I rang the technician at the audiologists office & he told me i had to bring them in to be couriered of to the manufacturer (Phonak) and that they would make the final assessment as to new ones or they will be repairable.
9 working days it will take! :(
So I'm panicking wondering how on earth she will cope with 9 days of no hearing at all, of course its probably not such a big deal in retrospect but i have a tendency to panic. So after more tears & the poor guy feeling sorry for me, we where allowed loan hearing aides for her. Same settings not the same hearing aides.
So this 9 days could not go any faster i tell you! So there you have it, the hearing aides finally beat me, time to consider chains for these darned things.

Monday, January 3, 2011

Just a general update

Happy New Year to everyone first off.
I have sat here for the last week trying to write something to sum up 2010 & the achievements & obstacles we faced. But still cant really put words to it. It was a great year but a hard year.
I figured i would leave a small update of December but other than that leave 2010 in the past & focus on 2011.

I briefly wrote about our Implant clinic appts & Genetic Testing appts. Well i have some news on both. Just before Christmas the Implant clinic rang to tell me the Drs had decided Savannah will not be implanted at this stage & she will be in review until she is 18mths old. I`m not sure if i had explained we went back for further hearing tests & behavioural tests & they determined she was hearing out of her good ear as what a CI would give her! Encouraging news, but we are still open minded about an implant later on for her.

On to Genetic Testing, Savannah was tested for Connexin 26 & 30 both are for the hearing loss gene. I was adamant that Savannah was a "just happened" case & that their would be no other reason for her hearing loss.
Well wasn't i wrong!
The geneticist rang us just after Christmas & Told us that Savannah tested positive. Her hearing loss is in fact genetic :(
The news that i just wasn't expecting at all!
We didn't get much information over the phone, she didn't tell us which mutation she had or anything to do with exactly what it means for her & us, firstly me & hubby need to be tested & then she will give us everything we need to know on 22nd Feb.
So after accepting Savannah's loss & being pretty sure it was something that just happened, now we are back to the whole unknown.
With Baby #4 on the way this baby now has a 1:4 chance of hearing loss, not to mention we need to have our older two boys re-tested. Hayden was tested at birth and Passed (but that's not to mean he still doesn't have a loss) And Blake never had a newborn screen as it wasn't available here in Australia at the time. We dont have any concerns over their hearing, but now we still need to make sure.
I feel like after we finally felt confident in everything we are back to square one!
I will keep you updated on the results.

Just to finish up quickly, Savannah celebrated her 1st Christmas, her first words & started crawling all in December! So overall not a bad month!
To date Savannah can say: MAMA, DADDA & BUBBA.
this kid is unstoppable! I swear she uses every letter in the alphabet when she babbles to herself.
So far she looks to be heading in the right direction, the hard work looks to be paying off!
here is some pictures of her first Christmas & a video of her saying dadda.

So 2011 brings a few special things in the first few months, Savannahs 1st birthday & Baby #4's arrival!