So if you read my last post, you would know where we currently stand on the Implant situation.
Well....today we had Savannahs 1yr appt with the ENT. She obviously receives all the reports & progression letters on Savannah to read up before our appts & so she can follow Savannahs progress along the way.
Well today she gave us yet another opinion on what we should do about the implant.
She recommends that we continue with the hearing aides & once necessary (if at all) then review the implant. She told me that she has seen many children with the similar loss as Savannah, some that have never needed the implant & have progressed wonderfully with normal speech & some not so well. But she did say that she believes that Savannah is getting enough from her hearing aides. From seeing her today & reading the reports she really does think the Left ear is working with the right ear (with whats left of the residual hearing) And carrying her along nicely.
OK...so where does this leave my scattered little brain?
I'm confused once again! The implant clinic recommend one, The Speech therapist thinks its a good idea to have 2 good ears, The ENT thinks we should not play with her residual hearing if its working for her...???
Me & Hubby had just decided that we where going to pursue the implant for her right ear in May when we go back for the review, but now i am not so sure again....
decisions decisions........
Tomorrow will give me a little bit more idea of what she is hearing as she has her 1yr hearing tests & hopefully is able to give us a better picture of whats she is hearing from the tests that they ran 4 mths ago.
Fingers crossed anyway.
But i know we are back to the drawing board to wait it out & see how she does..
Well....today we had Savannahs 1yr appt with the ENT. She obviously receives all the reports & progression letters on Savannah to read up before our appts & so she can follow Savannahs progress along the way.
Well today she gave us yet another opinion on what we should do about the implant.
She recommends that we continue with the hearing aides & once necessary (if at all) then review the implant. She told me that she has seen many children with the similar loss as Savannah, some that have never needed the implant & have progressed wonderfully with normal speech & some not so well. But she did say that she believes that Savannah is getting enough from her hearing aides. From seeing her today & reading the reports she really does think the Left ear is working with the right ear (with whats left of the residual hearing) And carrying her along nicely.
OK...so where does this leave my scattered little brain?
I'm confused once again! The implant clinic recommend one, The Speech therapist thinks its a good idea to have 2 good ears, The ENT thinks we should not play with her residual hearing if its working for her...???
Me & Hubby had just decided that we where going to pursue the implant for her right ear in May when we go back for the review, but now i am not so sure again....
decisions decisions........
Tomorrow will give me a little bit more idea of what she is hearing as she has her 1yr hearing tests & hopefully is able to give us a better picture of whats she is hearing from the tests that they ran 4 mths ago.
Fingers crossed anyway.
But i know we are back to the drawing board to wait it out & see how she does..
Hi Melinda, wow sounds like a hard decision. It's true that if one can receive adequate benefit from hearing aids then that is the way to go. The key is if she develops and maintains age appropriate speech, then the hearing aids are adequate. I am an adult with profound loss in the right as mod-severe in left ear. I do very well with my hearing aids and have near perfect speech. I say near perfect because some, mostly audiologists or speech paths say I have a slight accent. I went to regular school and became a corporate law clerk. Two of my daughters also have hearing loss. Ava wears cochlear implants (profound bilaterally) and Lauren has moderate loss/mod-severe and wears hearing aids. Feel free to email me anytime amydedomenico@yahoo.com. Your daughter is beautiful!!!!
ReplyDeleteHi Amy,
ReplyDeletethankyou for the reply. I have only just now seen this! I do follow your daughters blog but i never realized you also had hearing loss. I have to say when i read you had same loss as Savannah i felt more positive about what they have been telling me. I have only known children with hearing loss so sometimes its really great to know how amazingly well an adult has done with the hearing aides! And it sounds like you have done amazing! I do have a few questions (if u dont mind me asking) i will try sit down tonight or over the next few nights & send you an email! :)
appreciate the reply :)
Your daughter is beautiful~~
ReplyDeleteI just found your blog...thanks for sharing, we also have a blog and Aubrey my daughter has started one too....We are from Montana...we came to Devner for a second opinion and we came back this week for surgery....she gets turned on TOMORROW...we are SO excited!