Grommet surgery

So at the crack of dawn (to beat the dreaded rush hour traffic) we headed into the city for Savannah's grommet surgery. I was a little nervous about the anesthetic, none of the kids had ever had it or any kind of surgery before, so i was a tiny bit anxious. I was also really hoping to get some answers.
Savannah was so well behaved apart from the fact she was STARVING! I mean try telling a 2yr old she cannot eat at 730am!  I was constantly having to get her little fingers out of her lunch bag until after surgery lol.
 Everything ran so smoothly i couldn't have faulted the hospital & staff at all. They where all so good with Savannah & where on time for everything (which with a 2 yr old is a big TICK for me!lol)
I think the hardest part of my day was having to hold her down when they put the mask over her little face. Not something i liked but at the end of the day it meant she was going to get a grommet & hopefully that would help drain the fluid.
Once she was out of surgery & had woken up i came back in & sat with her. The nurses kept telling me that she might not feel herself for awhile as the anesthetic wears off. Ummm nope Savannah was literally up & ready to party 20mins later... hahahaha

Once she had some food in her & was rested up the Dr came out to let us know how it all went.
So after months & months of fluid being on Savannah's ears, when she got into surgery they where dry. Absolutely NO fluid on her ears at all! They gave her ears a good clean out whilst they where there & still inserted the grommet into the left ear as precaution.But if there isn't fluid how does the grommet work? does that mean her drop in hearing is permanent if there is no fluid?
I had held a whole lot of hope on that little grommet! I was hoping it would be what Sav needed to drain the fluid & have her hearing come back down to mod/sev...
So now we wait, wait another 3 weeks for yet another hearing test. Not sure what this test holds because the grommet was meant to help her hopefully hear better, but now I'm not sure what we are to be expecting.
Even though today was not how i imagined it & yes we have taken yet another bump on this journey , we can only hope that in 3 weeks time we get some results we can finally move forward with (implant) or we can move quickly past all this & get Sav back on track!
At least she left today will a huge smile on her face again & waving at all the traffic as we left the hospital...lol she is always such a trooper!

stay tuned...

We have a date

for Savannahs Grommet surgery, June 18th.I'm relieved that we don't have to wait to long but glad it isn't sooner because she has just come down with a cold! Once the grommet is in we will have follow up hearing tests to see if its worked on August 13th. So hopefully in the next few months we will know exactly where we are headed with her.

On another note Savannah went to the circus for the first time this Saturday. At first she was putting her hands over her ears because it was really loud, but as soon as the show started & the lions came out she was fine. I was quite surprised at how well she did especially for her age & because i honestly don't think she could of heard much (it was loud enough for me!).
But she had a ball, got a little ratty towards the end but nothing food couldn't fix ;)

Wordless Wednesday

Where we are at

Today we saw the ENT to find out where we are headed with Savannah.

The ENT has decided to go with a grommet on her left ear & then follow up a few weeks later with a hearing test. The paperwork went through today so hopefully we will have a date for her day surgery to get the grommet put in by this week.

This is where we are at & she did tell us that this may not work because Savannah has had fluid in her left ear since July last year so the drop in her hearing could be from damage that the fluid has caused. At least its a start & we are happy that they wanted to go ahead with this before we revisit the Implant clinic.

So now we just wait & see how things go! Stay tuned :)

May 21st 2010 & now.

On May 21st 2010, 2 years ago today, we where given Savannahs Diagnosis. We were devastated. I remember this day like it was yesterday. Not only because we where worried & uncertain about her future but because we didn't know back then that she would be able to learn to speak. Our life changed instantly. But we realized that things could be worse, we loved her no matter what.We knew the journey would be a long one & that every day would be challenging trying to teach our daughter to listen & speak. But we where told by the time she was ready for School she would be talking like her peers. The early days where hard, all the appointments, the speech therapy, and the constant thought "Am i doing all i can for her."

Then the words started coming & we couldn't have been happier. It felt amazing to hear simply little words like "mama" come from her.

But we knew time would only tell to what extent she was really hearing with her hearing aides. Savannah at the time was not eligible for a Cochlear Implant because she had too much residual hearing in her good ear (mod/sev).
Even though at times i wished she was implanted, she then would show me how well she was doing & then i would be glad she wasn't. 

The last 2 years have been a rollercoaster of good & bad, i wouldn't have changed it, but today i still sit here writing with a heavy heart worrying about her near future. The biggest difference from 2 years ago to today is that she will speak just like everyone else, we just have to go through all of these hurdles first! And without the hurdles there really would be no journey.
Savannah has been doing amazing even though she is now hearing at a severe/profound, profound level.

Her expressive & receptive language is amazing & age equivilant but,

we wont know much more untill we see the ENT next week whether they will refer her to the CI clinic again or they will try grommets.There was some fluid present but a few weeks back the ENT was unsure if grommets where going to help.

 We have another hurdle to overcome, but Savannah is still doing great & is a trooper and we will continue to do everything we can for her.

We are so lucky that she is an amazing little girl  who smiles through it all.

Happy Mothers Day

I wanted to wish all the mums out there a "Happy Mothers Day"

I hope you all had an amazing day with your kids.

I  had an amazing day with my beautiful kids.

I truly am blessed with the four of them.

movies,pretzels & lots of snuggles on the couch! perfect!:)

i also got spoilt with some lovely handmade gifts from the heart!

I Love being a mum

B is for Butterfly

Today i took the kids to some Easter holiday activities in our local area. It was surprisingly a lovely afternoon. They had a butterfly tent where the kids where able to hold the butterfly's, then we headed over for some face painting & then Easter Bunny came greeted the kids with some chocolate.
The kids seem to enjoy these no fuss activities & so did i! it was easy & enjoyable.
Savannah was so excited about the butterfly's, she loved it. She also got 2 little butterflies on her arm by the face painter. She was stoked!

All afternoon she was talking about her butterflies....the only word myself or my mum could really understand was Butterfly...... But she knew exactly what she was talking about. She is so cute when she talks. :)