Where we are at

Today we saw the ENT to find out where we are headed with Savannah.

The ENT has decided to go with a grommet on her left ear & then follow up a few weeks later with a hearing test. The paperwork went through today so hopefully we will have a date for her day surgery to get the grommet put in by this week.

This is where we are at & she did tell us that this may not work because Savannah has had fluid in her left ear since July last year so the drop in her hearing could be from damage that the fluid has caused. At least its a start & we are happy that they wanted to go ahead with this before we revisit the Implant clinic.

So now we just wait & see how things go! Stay tuned :)

May 21st 2010 & now.

On May 21st 2010, 2 years ago today, we where given Savannahs Diagnosis. We were devastated. I remember this day like it was yesterday. Not only because we where worried & uncertain about her future but because we didn't know back then that she would be able to learn to speak. Our life changed instantly. But we realized that things could be worse, we loved her no matter what.We knew the journey would be a long one & that every day would be challenging trying to teach our daughter to listen & speak. But we where told by the time she was ready for School she would be talking like her peers. The early days where hard, all the appointments, the speech therapy, and the constant thought "Am i doing all i can for her."

Then the words started coming & we couldn't have been happier. It felt amazing to hear simply little words like "mama" come from her.

But we knew time would only tell to what extent she was really hearing with her hearing aides. Savannah at the time was not eligible for a Cochlear Implant because she had too much residual hearing in her good ear (mod/sev).
Even though at times i wished she was implanted, she then would show me how well she was doing & then i would be glad she wasn't. 

The last 2 years have been a rollercoaster of good & bad, i wouldn't have changed it, but today i still sit here writing with a heavy heart worrying about her near future. The biggest difference from 2 years ago to today is that she will speak just like everyone else, we just have to go through all of these hurdles first! And without the hurdles there really would be no journey.
Savannah has been doing amazing even though she is now hearing at a severe/profound, profound level.

Her expressive & receptive language is amazing & age equivilant but,

we wont know much more untill we see the ENT next week whether they will refer her to the CI clinic again or they will try grommets.There was some fluid present but a few weeks back the ENT was unsure if grommets where going to help.

 We have another hurdle to overcome, but Savannah is still doing great & is a trooper and we will continue to do everything we can for her.

We are so lucky that she is an amazing little girl  who smiles through it all.

Happy Mothers Day

I wanted to wish all the mums out there a "Happy Mothers Day"

I hope you all had an amazing day with your kids.

I  had an amazing day with my beautiful kids.

I truly am blessed with the four of them.

movies,pretzels & lots of snuggles on the couch! perfect!:)

i also got spoilt with some lovely handmade gifts from the heart!

I Love being a mum

B is for Butterfly

Today i took the kids to some Easter holiday activities in our local area. It was surprisingly a lovely afternoon. They had a butterfly tent where the kids where able to hold the butterfly's, then we headed over for some face painting & then Easter Bunny came greeted the kids with some chocolate.
The kids seem to enjoy these no fuss activities & so did i! it was easy & enjoyable.
Savannah was so excited about the butterfly's, she loved it. She also got 2 little butterflies on her arm by the face painter. She was stoked!

All afternoon she was talking about her butterflies....the only word myself or my mum could really understand was Butterfly...... But she knew exactly what she was talking about. She is so cute when she talks. :)

Happy 2nd Birthday!

It was my sweet baby girls 2nd birthday today! Cannot believe 2 years has gone by already! Couldnt be more thankful for such an amazing daughter! And what a 2 years its been! wouldnt change anything for the world!  Here are some pictures from her party today :)

Where is Ryder

I don't even know where to start anymore. As time moves on i should be feeling excited about Progresses we are having with Savannah. But it seems as time moves on I'm more &  more worried. Yesterday we finally had some hearing tests. The results where clearly showing a 10db drop in her mod/sev ear along the 2000 & 4000 freq. I have suspected some changes  in listening skills, comprehension & new language over the last 5 months. The trigger for me was the fact her language has really come to a halt. She was doing so well & now we haven't even been getting some of the easy words she used to say. I will admit, its becoming extremely disheartening.

The Audiologists have suggested to turn the volume up on her hearing aides as a solution ... BUT my main concern is, what if turning up the hearing aide is in fact distorting the quality of sounds she is hearing?

They also commented on the amount of Wax they had seen in her ears. So today i took it upon myself to ask for a quick sneaky appt with the ENT whilst we where at the school for playgroup. Luckily our ENT is awesome & said she was happy to clean out Savannahs ears! 

So she retrieved a very disgusting amount of wax & noticed Savannah has a double ear infection???? How on earth does a double ear infection go missed is beyond me! She is teething so it could be apart of that too?
So todays quick lesson was to get her ears REGULARLY checked for wax & other nasties!!

Straight onto antibiotics & what do you know, this afternoon Miss Savannah has been talking every ones ears off..Coincidence?? Maybe, but in the last few hours tonight this girl was listening & talking more than she has in the last few months! So maybe it was just some wax after all?

We are back to the ENT in 2 weeks & another round of Hearing tests as well so we will know more then! But for the moment I have strapped the FM on & we are going to work on some new words with her & it gives me some hope that this could only be a small issue & not a progressive hearing loss issue.